IT Takes Kidneys

Hello,


My name is Douglas R Gempel. I am blogging to make my spouse's diseases assist or help others who may have similar issues and do know where to turn. My wife has been dealing with serious health issues ever since we met. In 1988, after an aerobic work out her left kidney started to hemmorage. When she was 13, her family doctor was concerned enough about her red cheeks that he sent her to a specialist in Dermatology. The specialist determined that she had "Tuberous Sclerosis Complex". A rare genetic disease that affects 1 in 25000 births, TSC was attacking her kidneys. This killer is complex because it involves every major organ in the human system. Not all of those diagnosed with TSC will experince every manifestation. But my spouse has several. Her original kidneys were removed but before they were removed they grew in size to be as large as a laboratory wash basin. They had a large number of begnign cysts or tumors called "Angiomyolypomas. While she was at Mayo Clinic they also discovered that her lungs were similar afflicted with another genetic disease called "Lymphangioleiomyomatosis"(LAM). She was being looked at by doctors as a candidate for a kidney transplant and most likely a candidate for a lung transplant.